I Won’t Give Up

I wrote the following words earlier this week: As I listen to the discordant, high-pitched voice trample my love and concern, I dream of the day I don’t have to be my own champion. I wrote them in a fictional setting, but these sentiments follow me into my real life quit often. I thought I had gotten to a place where I wasn’t quite so invested in the behavior of my number one son. I tend to take it personally, though I know he has a number of medical diagnoses that exacerbate the severity of his behaviors, that the words he screams in anger don’t mean anything to him. Yet, I keep running to my room in tears, with my heart-broken and my body heavy with the weight of despair.

I have written in the past about my autistic son who also suffers with anxiety and oppositional defiance disorder. So, he has trouble with executive functioning skills, he has poor memory, he is terribly impulsive, and can’t stop talking to save his life. Also, like most children, he is the center of the universe and wants what he wants. Lately, he has become aggressive again. This time around he is bigger and stronger and louder. I leave rounds of aggression with him and am covered in bruises, and two minutes after he calms down enough to apologize he inevitably acts like there wasn’t a hurricane of emotional tantrum with him at the center. Right this moment, for the second time today, he is screaming about how hurt he is, how much we hate him, how we don’t listen to him, how it is basically our fault as his parents that he is screaming and kicking walls loud enough for the neighbors to be concerned. He is harming himself and breaking our hearts and I don’t know what more to do for him. Have you ever wanted to give up? I WANT TO GIVE UP, I WANT TO GIVE UP, I WANT TO GIVE UP! But I don’t. I DON’T give up. Every day I get up and do it all over again, because he is my child and I love him. But, I am not going softly into the abyss. I continue to work at getting him the best medical care and therapy I can. I am just really afraid that one day soon, the decision on how to care for him will be taken from me and my husband.

Does he understand what he is doing and uses the extreme behavior as a way to escape the things he doesn’t like and doesn’t want to do? Does he really not remember, or understand how he is hurting himself, how he is hurting those around him? I feel I no longer know what is prepubescent boy and what is ASD, or Oppositional Defiance, or Anxiety. Hell, maybe it is some nice combination of it all. That is usually how this works, right? Hardly anything dealing with the mind and body is completely autonomous and I should know that. Only, it is hard to be dispassionate and calm in the face of such anger. I know that I want him to accept and respond to help for this latest crisis, I want him to not only realize his potential but reach it too.

I am scared. I am tired. I am hurt. I will pray and continue looking for a good therapist to add to the roster. I will get up every day and do it all again.

Mommy Needs A Time Out

I am struggling with a way to talk about my day without sounding like a dictionary of clichés, but I really don’t know if that is possible. Or maybe, it isn’t quite possible for my brain to work in a manner that does not rely on clichés to get its point across.

I have talked about my autistic son and our struggles a number of times here, but I haven’t shared much of his sister’s journey. She is not autistic but does struggle with being twice exceptional, or 2E, and being the sister of the child who is different. If you want a refresher on 2E, you can read my post about it with some educational links. She is currently also in therapy to help her deal with anxiety and other coping skills needed to traverse her world as a gifted, asynchronous student. And all that sounds wonderful, today was a dose of the gritty reality.

We have talked about her school day, she seems to have had a good day and is excited because she got to spend money in the “Holiday Shop” at school. Now, this is set up so the students can pick small gifts for their family. She has apparently spent most of the money on gifts for herself. Besides, it isn’t as if she has earned this money, she has to ask us for it. She has eaten, fast food cause it was that kind of day, and has been given a deadline for rest in anticipation of homework time. Every time, I think that will be enough. That speaking to them in a reasonable manner will allay struggles against doing tasks they don’t won’t to do. It felt today as if this technique only works about 10% of the time. Whenever things are going bad, it is hard to see and remember the many good times. The times where you get more cooperation than opposition and more smiles than tears seem light years away, almost as if you have never experienced them. So, it comes time for homework and because I have told her to allow me to get the homework out and bring it to her, she has lost her mind. Screams are heard, bodies are thrown around, pencils go flying and papers are torn. What? Really? Because you can’t get the homework folder, you are now incapable of reading the directions or completing your homework. You need your parents to sit with you, you don’t need to calm down, you aren’t going to your room, you won’t stop screaming at your brother who is only trying to help. Her loving disposition has turned into that of a wet cat cornered in an alley. She is kicking, screaming, and scratching anything or anyone who gets close. She can’t tell help for harm anymore and no rational thoughts are going through her mind.

It always starts so innocuous. We are skipping through the tulips and then BAM! a bull comes out and tramples us under his hooves. That is how it feels. You are doing all the things normally noted to ensure a smooth transition between school and home. Yet, sometimes those techniques don’t do what they are designed to do. She needs more time, but she won’t say that, it is just meltdown over not being allowed to get her homework. Now, you may be thinking, why didn’t you just let her get her own homework. To be honest, I was  executing a plan which included them cleaning up the tasks they were working on while I distributed homework. I had a plan and wasn’t flexible fast enough to head off the meltdown. I don’t always get it right. That is the key. I just don’t get it right every time. We think once we are parents that we will somehow be magically equipped with the right response to every thing that happens. The thousands of parenting books we are told we should read in preparation lulls us into thinking that is all it takes, knowledge of what to do when. Well, the real world doesn’t work like that and not just when it comes to parenting. I am struggling like most parents I know, to get it right. Parent guilt is a thing, especially if you are wholly invested in giving your kids a solid foundation for going out into the world. Which, I must say, I think is every parent until proven otherwise. It helps me sleep at night, true or not. I start off with the calm, low voice. You know, the one designed to force them to listen hard and reassure them you still love them. No matter that they have pulled everything off the shelves in Target, you are here, a never-changing bulwark of love. You constantly redirect the behavior, repeat the requirement, and swallow your tongue when she screams “I don’t care” and throws the pencil for the fifteenth time tonight! Then, by time twenty, you have lost it too. You want to let your inner seven-year old out to play and that seven-year old inside you wants to kick and scream to voice their displeasure and show the kid you can do it too. You can meltdown without a care in the world, and while you are doing it, if you are doing it, it feels freeing and fun. Then immediately you feel disgusted with yourself, at your lack of ability to not let an eight-year old drag you down into the abyss. You scream and then you rein it back in, a desperate attempt to re-exert your control. Frankly, it hardly ever works. The only way to really get control again is to apologize for your behavior and take yourself off to lick your wounds. Basically you have to do all the things you tell the kids they need to do in order to change their behavior. Ugh, it is such a bad feeling when your kids make you eat your words. I take this moment to tell them that Mommy needs a time out, then I run and lock myself in my bedroom in a desperate attempt to keep them from following me.

And that is the lesson you have to learn for yourself. Sometimes, Mommy needs a time out in order to be tuned in to the other important things. Because, honestly, the homework was only the straw that broke the proverbial camel’s back. She was obviously carrying around feelings about something else that had taken place in her day but couldn’t really articulate that. A meltdown over homework was her cry for help. Me screaming about the definition of “fair” was mine. So, I calmly told them I should take a time out since I was resorting to raising my voice. Then I pushed them out of my room and locked the door and read a book until I could think about opening that door without screaming.

Trying to Say Yes to No

What just happened? I am sitting in a room breathing hard like I ran a marathon, my 8 year old is screaming in his room and I just wanted to finish our homeschool day. As agreed. We agreed, but he exploded when it was time to stop playing video games. I mean full Hulk green anger over having to stop playing the game and finishing his math, which is mostly review at this point and a subject he does well with.

Backstory you say, okay, no problem. My son, X, is autistic. He has Autism Spectrum Disorder. Yes, he is what many term high functioning, and would have a diagnosis of Asperger’s Disorder if the Diagnostic and Statistical Manual – Fifth Addition ( DSM-V) hadn’t done away with that diagnosis. He has been diagnosed since the age of 3 and has made many strides, yet there is more to do. He is behaviorally behind many of his peers and socially awkward in that he doesn’t always know what is an appropriate response. Many times changing tasks can be arduous. This is why why we discuss our schedule, time frames, and what is expected. This often works, often I say, not always. Today I gave the patented parent countdown to task change. You know, where you say, ‘Okay sweet child o’ mine, we will be starting math in 10 minutes. You should wrap up your game and prepare for school time.’ (Do you hear the sarcasm written here?) Sweet child acknowledges the information, you know after you stand there for eternity then ask him does he understand? Five minutes later, you give the same spiel, only now he has 5 minutes and he repeats acknowledgement.

5, 4, 3, 2, 1…

‘Alright sweetie, time to get started, you may leave that game on because we won’t be long.’

Immediately there is screaming, foot stomping and a lot of ‘this isn’t fair, you hate me, why can’t I just have a few more minutes to see this update, you don’t understand’ along  with actual tears and spittle flying! I was proud of myself, I was calm through much of this, I repeated the request, I pointed out the feelings on his stress scale, I reminded him of his acknowledgement of the agreement, I was hitting all the buzz words used to help alleviate the stress of these situations and get the desired outcome. And then, I wasn’t. I was yelled at one too many times, I was given aggressive body language and hateful words and my heart broke, again, and I needed time to pick it up and put it back together before I could go on. X was sent to his room to calm down, Mommy was sent to her room to cry and put herself back together. She needed to remind her heart that her son loves her, has made vast improvement, doesn’t know how to express his frustration, and really feels strongly about changes. In this case, a video game was updating, that meant things were changing, by leaving before he could see these updates, he felt adrift in a sea of the unknown. You may feel adrift when you are at a party where you only know the host, X feels adrift when he has to leave things undone or unknown. He thinks that isn’t right. I think it isn’t always a big deal. Somehow we have to meet in the middle, we don’t always do it gracefully. Today, he had a hard time being okay with a no, you may not do that right now. Today, X could not say Yes to No.

How do you or your kids if you have any, handle saying Yes to No?